One condition, however, was diagnosed at the hospital and seems to be getting more extreme.
In the NICU, one of the doctors told me that Ellie was being diagnosed as "cute." She seemed to be displaying all the symptoms once we got home, and now the severity seems to be increasing.
I recently received a letter from Ellie's cardiologist, stating in part, "Eleanor is an adorable 4 month old..." She's no longer just cute. Adorable is the new diagnosis. Apparently, this one is terminal.
If Ellie progresses to beautiful, we're in trouble, but we have a good team:
A cardiologist for her heart.
A geneticist for her extra chromosome.
A physical therapist to help with low muscle tone.
A surgical team following her duodenal atresia repair.
An educator to help with cognitive development.
A speech therapist for when Ellie begins baby sign language and spoken language.
Aunt Terri, Aunt Danielle, both grandmas, and various other relatives to assist with retail therapy for cute/adorable/beautiful-ness.
|(Ellie with a sloth bear.)|
Yep, retail therapy. We've been hearing that the only treatment for adorable is adorable stuff, and fortunately, we have plenty of family willing to assist with treatment. We may need another dresser for Ellie's room. (At that point, we will no longer be accepting retail therapy assistance, dude to our incident with Ellie's current dresser. Did you know that UPS ships fully assembled dressers that weight 150 pounds? Neither did we, until one was on our doorstep). For now, we're accepting the spoiling and enjoying our baby girl.
Part of enjoying time with the spoiled little munchkin this weekend was a trip to the zoo. And the pool. And just hanging out. And church. And dinner with friends.
|(We love sloth bears.)|
|(Hey, here's me! Since my photo rarely makes an appearance.)|
I guess we were pretty busy!
|(Last week, I posted a sunflower photo from downtown. My friends have even better sunflowers.)|
Also linked up at Paper Heart Camera.