|(Working on head control.)|
|(From our walk.)|
(FYI, if you and your spouse are training for the same marathon and have a baby, we recommend switching who gets the first long run each Saturday. I got the second run this week... toasty!)
|(Cooling off - the pool flattened the mohawk!)|
|(Look in Matt's glasses, can you see me?)|
I love spending time with my family, and since June 16, I've been holding Ellie a little tighter.
|(Photo by Matt, thanks babe!)|
During my pregnancy, I found support online from other women carrying children with Down syndrome. Knowing we were not alone in our questions, fears, hopes, and dreams helped me immensely. Ladies, I know many of you are readers - thank you for your love and encouragement.
|(Sleepy little Ellie.)|
We now have lots of pen pals all over the country, with whom Ellie and I can share her latest victories and struggles. As the mommies of little ones with Down syndrome, we've emailed, asked questions, shared photos, and compared NICU stays. I thought about trying to describe this community, and while I was pondering the description, I came across this blog. I won't bother trying to assign words to what another mom already described so well.
|(Just me, because most other DS mommies live too far away to hang out.)|
Although for the most part our sadness has been overshadowed by the day-to-day routine of loving these little chromosomally enhanced kids, we still cry together, too.
On June 1, Edie's son Max was born eight weeks early. He passed away on June 16, and his short life he impacted the Down syndrome community deeply. He fought hard and brought joy to his family. We celebrated with his mommy when his health showed improvements, and we mourn with her now.
For babies with Down syndrome and complicating health issues, birth is a victory.
This week, we're honoring Max. Our giveaway this week comes from Sweet Little Chickadee, who will be donating 10 percent of July 2011 sales to the National Down Syndrome Society in memory of Max.
|(Samples from Sweet Little Chickadee.)|
One random commenter will be given a $20 gift certificate. (And we'll pass all words of encouragement along to Max's family!)
For extra entries, "favorite" Sweet Little Chickadee on Etsy, follow Ellie on Facebook, and follow Sweet Little Chickadee on Facebook. Leave a comment for each way you enter. A winner will be selected by random.org on Sunday night, to be announced next Monday.
Make sure you check out Juli's blog from previews of her cute goods!
|(Aren't these cute?)|
Check out the sidebar for a coupon code to the shop, too!
Sweet Max, your family and friends love you. We wish we could do more for your parents and siblings.
Oh, I almost forgot! The winner from last week is:
Comment #8, Life With Kaishon: "Awwwwwwwwwwwwwwwwww. She is so cute. I should say that 4 times in honor of the number 4 sponsoring this post : ) I am too tired though."
Email me and we'll get your bracelet to you from The Awareness Shop! (And everyone else, check out the coupon code still in the sidebar. And check out Life with Kaishon, too, for beautiful photos and great writing.)
Enjoy your week, and please say a prayer for Edie and the rest of Max's family as they adjust to life without their little man.