Thursday, October 27, 2016

{31 for 21} Shopping.

Today Ellie had early release, so we went Christmas shopping after school.

This year will be so fun for Christmas, if Caroline doesn't tear apart the decorations.

Ellie wanted to buy a BEAUTIFUL shirt for her uncle.

She added extra decorations to our cart at Michaels.  (And got busted by mom when my $5 purchase rang up at $35.)

Again, not about Down syndrome but a glimpse at our life.
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Tuesday, October 25, 2016

{31 for 21} Not a Darn Thing to do with Ellie.

I've struggled this October.  I have so little left to say about Down syndrome.  Yes, it's a huge part of our lives and a huge part of Ellie.  Ellie is a huge part of my life.  I love her.  Down syndrome is part of her.

But Down syndrome is hardly the focus of my life or hers.  It feels seasonal.  IEP meetings?  Oh, Down syndrome is huge.  Medical issues?  It's all I think about.

But getting ready for Halloween/Thanksgiving/Christmas?  Not so much.

Here are some things on my mind WAY more than Down syndrome.

* Photography:  As many of you know, I launched Megan Landmeier Photography, LLC about a year and a half ago.  I've been so busy with fall family photos.

* Noonday Collection: I've been in love with Noonday Collection for a long time, and I finally became an Ambassador.  Locals, you can book a trunk show.  Locals and non-locals, you can shop online.  They do great fundraisers for adoptive families!

* Halloween:  Ellie has a walk for the homeless at school that day.  Does she wear a costume?  I must remember to ask her teacher.

* Daredevil baby:  Caroline thinks everything is a jungle gym or a balance beam.

* Christmas: What are we getting the girls?  What is Santa getting the girls?  What will we do when my mom visits?  What will I get for my dad?  What the heck will I get Matt?

Sometimes, Down syndrome takes a backseat.  And when it takes a backseat in October, you get blog posts like this!

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Monday, October 24, 2016

{31 for 21} Medical.

Ellie is now pretty healthy, but recently some people have asked me about her various doctors.  She has a lot.  So here's a glimpse of a "now healthy child with Down syndrome with a lengthy medical history" doctor schedule.

Pediatrician - When sick, well check annually, flu shot.
Geneticist - Annually
Cardiologist - Annually
GI Doctor - Annually
ENT - New, annual I guess?
Dentist - Twice a year
Ophthalmologist - Annually
General Surgery - Dismissed around a year old.
Sleep specialist - TBA

Plus, weekly physical therapy, speech therapy and occupational therapy at school.

It only seems overwhelming a couple times a year when we have a bunch of appointments at once and Ellie misses school, etc.  She's really tough and hasn't complained!
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{31 for 21} Whoops.

I forgot to post yesterday.  Since I was a slacker, let me tell you about Ellie's day.

* Woke up way too early.
* Ate breakfast and played with Mommy and Caroline.
* Played with Daddy and Caroline while Mommy went to a photo shoot.
* Drove to church with Daddy and Caroline.
* Went to kids church and Sunday school.
* Came home and ate lunch and played and talked to Mommy and "helped" Mommy edit and fell asleep on the bench in the living room which looked horribly uncomfortable.  It's not padded.
* Went to the park with Daddy and Caroline while Mommy was on another photo shoot.
* Ate family dinner.
* Helped Daddy iron and vacuum.
* Said prayers with Mommy and Daddy.
* Snuggled with Mommy.
* Fell asleep.
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Saturday, October 22, 2016

{31 for 21} Caring.

More recent Ellie stories, taken from Facebook.

Sweet ellie. I came home from tutoring and got everyone ready for bed and was dealing with a screaming Caroline when ellie pointed out "Mommy! You forgot to eat your dinner!" True story. So she walked me to the kitchen so I could eat.


Ellie just described a mushroom as "nasty" and I can't help but feel like my five year old is using timely insults. Next she'll be calling Caroline a puppet.


Ellie for the win. Caroline woke up screaming. Gave her a bottle. Snuggled her. Tried everything. Was getting waffles for the girls while Caroline cried some more and Ellie said "she wants a squeezie." And Caroline has been happy ever since.

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Friday, October 21, 2016

{31 for 21} Runner.

I like running.  I really, really like running.

I'm running a 5K in a few weeks.  Ellie is doing the 1K kids race.  She asked if we could go running after school to "practice running for the kids race!"  Her teacher asked me about it - despite a downpour, Ellie had confidently announced her plans to go running after school.

So we ran.

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Thursday, October 20, 2016

{31 for 21} School Day Video.

I asked Ellie to share about Math time at school.  The game she's talking about is where you roll a number, build that number, and then determine which group has more/fewer.  It's a game to play with a friend.  Although Ellie is in the highest reading group, Math is a struggle for her but Kindergarten has given a huge boost to her numeracy skills!
A video posted by Megan Landmeier (@meganlando) on
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